About Us

Who we are

Strongbones Children’s Charitable Trust is a national registered charity set up to help families who have children suffering from brittle bone disease, bone cancer, scoliosis, arthritis, and all other serious conditions of the bone.

The charity has now been registered for over 15 years, which gives us years of experience in our field. This experience has allowed us to assist children and their families with guidance on how to make their conditions more manageable and enhance their quality of life to an optimum level.

hands with paint in the air

Our aims are to take children out of social isolation and give them the ability to participate in every day life. We also give emotional support whilst they come to the realisation that their child has a long-term incurable disability that will have a life changing impact on the whole family.

A majority of the children we encounter come from some of the most poverty stricken sections of society coupled with the fact that many of these parents have had to give up employment to provide round the clock care for the life altering conditions of their children.

We are sure you appreciate it takes much strength and resilience to care for a disabled child, and we often feel society overlooks this as a whole, leaving carers and their children feeling severed from the outside world.

What we do

Below is an extensive list of the work Strongbones carries out, but the trustees are always open-minded to innovative projects exclusive to children under our criteria.

  • We provide sensory equipment, sensory rooms and practical advice regarding construction of sensory rooms.
  • We provide a online support network to over 1,000 families
  • We provide walking frames, wheelchairs, specialist buggies and adapted trikes to enable children to gain access in the community.
  • We provide outdoor play equipment  to enable children to play with optimum safety.
  • We provide advice to families in accessing welfare benefits. This includes disability benefits and disabled facilities grants that they may be entitled to receive.
  • Adaptations to properties and medical equipment to be installed, this allows families to live as normal as possible. We also consider small top ups to DFG grants and advice on discretionary grants provided by local authorities   to enable children to be cared for on ground floor level where the use of stairs is inappropriate or other adaptions to be made the property to enable the child to lead a more independent life.
  • We also provide disability aids and equipment to enable children to have a enhanced quality of life.
  • We organise family days to enable parents and children to network.
  • We organise and fully fund a yearly superhero party in the summer  to host 400-500 people.
  • Our Youth Ambassador Myles selects a child weekly to receive a Myles Sketchley Inspirational Award in the form of a medal, along with a certificate and a gift.
  • We provide balloons to children in hospital.
  • We fund art and educational workshops in SEN schools that a strongbones child attends.
  • We support siblings through our Super Sibling project which involves exciting competitions and inclusion for the whole family.

Strongbones has given us something to look forward to. When each day we are given is another unexpected day we have with our precious son, it’s very hard to look forward to anything in the future because our child might not make it past today.

Strongbones allows us to make plans for their wonderful events knowing we will be well looked after, cherished, loved and amazed with their thought and originality and incredible hospitality. When every single journey outside of the home is a major operation, it’s lovely to know Strongbones will look after us on their magical trips away to meet other amazing families and to make memories we will treasure forever”

~ Sam Jeynes